Thursday, March 25, 2010
LUPUS, Family, Friends, and Spouses
Certainly one of the hardest aspects of LUPUS is telling your loved ones you have an incurable disease.
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Certainly one of the hardest aspects of LUPUS is telling your loved ones you have an incurable disease.
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OUR MISSION
- LUPUS Awareness and Research
- Our mission is to bring about more public Awareness concerning LUPUS. We hope to achieve more funding for continued more in depth, cutting edge Research. We are helping to raise funds through our Virtual LUPUS Gift Shop called MAGGY's PLACE, with proceeds donated to The LFA.
One of my frustrations w/Lupus is the fact that ppl don't believe I suffer from a serious condition bc I don't look sick. My biggest issue is fatigue. I catch alot of flack for it bc ppl can't see an obvious reason why I am always tired and tend to think I'm slothful.
ReplyDeleteGorgeous wolf pic!
ReplyDeleteI've been dxed with lupus since 1985 and feel like I've been through hell on earth. I'm glad to see, though, that there have been a lot of improvements in awareness of the disease and treatment since I started out. But we have still got a way to go.
It is still a hard disease to cope with and I think we have a very harsh social climate right now where people feel free to make nasty snap judgments about everyone from the sick to the overweight to the political party which opposes their own. I hope we eventually move towards a society which is a lot less angry.
I'm at http://710lupuslife.blogspot.com if you want to visit.
TY Beep I invite both you and Cbigdimples to visit my website www.lupusawarenessandresearch.org
ReplyDeleteThis is great to remember! After a year of self-pity, I am finally realizing what my dx has done to my family. It brought some of us closer, and tore others of us apart, due to the reasons that you mention!
ReplyDeleteHi Amy,
ReplyDeleteIt is very frustrating what this disease can do Beyond the physical components. The destruction or preservation of one's self esteem can prove to be a vital component in Beating LUPUS. I know it may be cliche but none the less I believe this quote to hold significant value:
"Remember, No One Can Make You Feel Inferior Without Your Consent."
~Eleanor Roosevelt~
Amy, Have you seen the video called the "SPOON THEORY" ??
ReplyDeleteIt's a great way to explain your way of life since your diagnosis of LUPUS. It put's into perspective very clearly what you go through everyday in comparison to people who are not stricken with a debilitating chronic illness.
Please visit my website @ www.lupusawarenessandresearch.org under the Lupus Fighters Tab, check out the video I think you will be pleasantly surprised. CAUTION: This is a tissue needing video!!